Family Support Program
The Family Support Program of the Midwest Children’s Brain Tumor Center provides a variety of supportive services for patients and their families.
Midwest Children's Brain Tumor Center - Overview of Services Video
Child Life Specialist
A child life specialist works with families to meets the emotional, developmental, and social needs of hospitalized children. A child life specialist who works specifically with children who have brain tumors or cancer will follow the child throughout treatment. The same child life specialist also coordinates the family support program.
Multidisciplinary Off-Therapy Clinics for children with brain tumors
Multidisciplinary clinic meets on the second Tuesday of the month for children who have completed their chemotherapy and/or radiation. The clinic is attended by the advanced practice nurse, neurosurgeon, radiation oncologist, oncologist, and child life specialist. Other specialists can be available to attend the clinic as needed.
School Advisory Program
The School Advisory Program is a resource for parents and schools. This program provides support for families by working with parents and schools to navigate the transition back to school for children who have been treated for brain tumors or other cancers. These medical treatments can impact a child’s ability to think, process information, and interact with peers. Sometimes, children benefit from accommodations or special services at the school.
School Advisory Program - Video Series 1: Finishing The Year Strong
Returning To School
When a child is transitioning back to school, it may be helpful to have a child life specialist go to the school and do a presentation for his or her classmates. The presentation focuses on educating the students about the illness and can clear up any misconceptions and questions the students may have.
On Call Nurse
An advanced practice nurse in on call 24/7 to assist you with your child's care. You will meet the nurse at diagnosis and he/she will be your consistent contact through treatment and during follow-up care.
A child psychologist is available on site at the children's hospital for support in the hospital as well as in the outpatient setting.
Throughout the year, we sponsor outings and events for the entire family free of charge. It is an opportunity for families to be together, have fun, and hopefully relieve some stress. Some of our events in the past include a holiday party, the annual Peds in the Weeds picnic, a Wolves hockey game and a swimming party.
The music therapist comes to see the patients in clinic every week. It’s often a great time of singing and playing musical instruments. Music therapy is also available in the hospital.
Dog Therapy Program
While in the clinic, you may see a dog that is trained to visit and engage with children in the medical setting. There is also a dog therapy program in the hospital.